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National Cancer Registrars Association                          GA Tumor Registrars Association



WHAT IS A TUMOR REGISTRY?

A tumor registry, sometimes called a cancer registry, is an office where information is maintained on persons who have been diagnosed with cancer. In addition, a registry may contain information about certain types of tumors or diseases which, although not cancerous, have a tendency to become so.

WHAT DOES A TUMOR REGISTRY DO?

A tumor registry collects and stores information on tumor (cancer) patients, conducts periodic follow-up on these patients, and prepares reports on the data collected. Following is a list of some of the information the registry looks for.

  • Demographic: Information, such as age, sex, race, and place of residence.

  • Pertinent medical history, such as the name and date of the original diagnosis and any prior treatment of the cancer.

  • The name(s), date(s) and results of procedures and techniques used to diagnose cancer, such as biopsies, cytology reports, x-rays, scoping procedures, and exploratory surgery.

  • The types of therapy used to treat the cancer patient, such as surgery, radiation, chemotherapy, and immunotherapy.

  • Follow-up medical information on the patients after initial treatment is done to ascertain any additional therapy the patient may have received and the quality of the patient's survival.

WHAT IS THE TUMOR REGISTRY DATA USED FOR?

Individual physicians and hospitals, as well as community, state, and national medical organizations need a variety of information on cancer patients. Tumor registries are the basic unit for collecting this information and providing it in a usable form. Individual physicians and hospitals use this information to review their own efforts with respect to such things as:

  • How well they do at early detection of cancer case.

  • How frequently certain treatments are used for various types of cancer and how effective those treatments are.

Physicians who treat cancer patients are constantly concerned with examining and improving cancer patient care. On a yearly basis, sometimes more often, the tumor registry prepares one of more reports containing information that allows the hospital staff and physicians to review their cancer program and determine which treatments are most successful.

A tumor registry is actually a working index of biostatistical data which is continually available for clinical research by the medical staff. Information is also provided to state and national health agencies for the epidemiological study of cancer. Epidemiological studies investigate the various conditions (environmental, social, etc.) that seem related to the frequency and distribution of various types of disease within a community. Many of these studies are conducted by the National Cancer Institute, part of the National Institute of Health, which, in turn, is part of the United States Department of Health, Education, and Welfare.

Our tumor registrar is also a member of the National Cancer Registrars Association and Georgia Tumor Registry Association.

If you should have any questions about the registry or need assistance with anything please feel free to call 706-544-4663. Our office is open from 0835-1620 Monday-Friday.



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